NVA

Bacterial Meningitis at 31

Bacterial Meningitis

My daughter developed Intracranial Hypertension around 10 months ago, and after numerous lumber punctures (9 or 10) she was eventually was fitted with a lumbo-preritoneal shunt. The operation did not go as planned and she developed infections and post operative complications. Following a further operation (we were informed she had an infection) she was admitted for a revision of the previous operation (shunt fitted) and developed bacterial meningitis. 

She was in excruciating pain. It was a horrendous time for her and us, as a family, to stand by and helplessly watch her suffer. She was in hospital for a further month. Upon release she appeared to slowly improve. However the last few months she appears to be suffering more with the following symptoms: 

Headaches, which she describes as pressure, neck pain, fatigue, insomnia, pains from her neck into her hands. She is currently prescribed diazepam and paracetamol. She has contacted our GP on numerous occasions and has only been offered counselling. As a family we are struggling as to what to do and are wondering if any others have any advice, or can suggest any help that may improve her symptoms?

MAY 2016